Autistic Spectrum Disorder

We have very recently created this category due to an increasing number of carers looking after people with ASD who are now using our service.  We shall start to populate this section and invite you to notify us of useful resources so we can signpost them to other service users.

National resources

A list of national organistions may be found here:

http://www.shantsnas.org.uk/Usefullinks

Local support groups:

Re:Minds

A new parent-led group for families of children with Autism or mental health issues. Founded with mutual support in mind, and for families whose children face similar issues to meet up in an informal setting and share knowledge and talk about any issues they are facing.

We meet once a month, during term time, on the last Friday of each month.

Who to contact

Contact Name
Gill Waring
Telephone
07805691128
E-mail
re.mindssouthampton@gmail.com
Where to go

Name
St James Methodist Church
Address
St James Road
Southampton
Postcode
SO15 5HE
Children’s Centre Areas
North Shirley

Local Autism Directory: https://www.autismhampshire.org.uk/local-autism-directory/directory/

Groups For Parents/Carers in Southampton:

ASD/Asperger Support group

3 Counties Counselling and Autism Assessment for adults, aged 18 plus

Contact:

Tel: 07767329624

Asperger’s Adventures – Minecraft and Meltdowns

Facebook group welcoming anyone interested in Autism

Contact:

Email: michellerebello@hotmail.co.uk
Web: https://www.facebook.com/groups/aspergers.adventures/

This group was set up by Michelle Rebello, mum of three on the spectrum and aims to support families and celebrate Autism. They also have useful resources for raising awareness and a gamer tags list to join our autists together online.  Please request to join the group on Facebook (it is closed to keep member discussions away from individual’s timelines). Our members include adults with Autism, parents and carers, professional bodies and local organisations. We have members from all over the world but we are based in Southampton so we promote local events.

We are widely respected and recommended by professional bodies including CAMHS and Autism groups.

Come join in the fun!

I CAN Help Enquiry Service

Talking Point is a website all about children’s speech, language and communication. It is designed for parents, people that work with children, and children and young people themselves. It contains everything you need to know about supporting children’s speech and language development. Some children struggle to communicate, and Talking Point helps you to identify if a child is having difficulties or falling behind. If they are struggling, then it tells you what to do. The site contains valuable resources which can be downloaded and used to support children, and links to lots of other places that can help. Talking Point is run by I CAN and receives funding from The Communication Trust.

I CAN Help is a range of information services that provide help and advice to parents and practitioners about speech, language and communication. It includes a free call-back service with a speech and language therapist, Talking Point – the website dedicated to speech and language, and I CAN’s assessment services.

Call 020 7843 2544 to arrange a free phone call from one of I CAN’s speech and language therapists, or you can email your questions to help@ican.org.uk. For more information visit www.ican.org.uk/help

Light It Up in Portswood Parent Support Group

The group has been set up by Claire Pritchard and good friend and fellow Autism mum Rebecca Clavelle. We both have children with Autism and noticed that there is nothing in our local area (i.e Portswood) that we know of, for local mums/dads to get together, vent and just be in an environment where they feel they can let off some steam and talk to others in a similar situation.  The group meets every month on a Thursday 10am to 12pm at the Community room in Sainsburys, 224 Portswood Road, Portswood, SO17 2LB.

Contacts:

 

pritcho77@gmail.com

lexc83@icloud.com

Southampton Parent Carer Forum

The Parent Carer Forum has been set up to enable parents/carers of children and young people (aged 0-25) with a disability or special educational need to have a voice and have an impact to the services that matter to them the most. The forum is funded by Contact A Family and the Southampton SEND service. We welcome parents/carers to join us and make a difference.

https://www.facebook.com/southamptonparentcarerforum/

send-parent-carer-forum

Aspie Helping Hands Evening group In Southampton

Free Service Support Group for Parents/Carers of Children with Autism.  A support group for parents and carers with a child/children on the autistic spectrum the group is run by parents whose children are in primary and secondary school. They meet once a month at Saint Annes School, Southampton.

Contact: Tel: 07774 260926 or 07786 085029

Southampton National Autistic Society, South Hampshire Branch, Asperger & Related Difficulties

Diary dates for all events:

http://www.shantsnas.org.uk/Diary%20dates

Sue & Tracey 023 8043 2612 07532 282301

Email: aspsg.shants@gmail. com

Website: www.shantsnas.org.uk/Home/Sholing

Come and have a chat, meet other people, share your experiences, make new friends and gain information from the experiences of others. Share advice and information about services and facilities available for children with Asperger’s Syndrome and together influence attitudes about autism. There are two social groups one for adults and older teenagers age 16+ the other for children. The Children’s group meets fortnightly during term time on Tuesdays from 6.30 to 8.30 pm and the Adults’ group meets fortnightly during term time on Tuesdays from 7.00 to 9.00 pm. Both are at St Patrick’s Church Hall, Portsmouth Road, Woolston, Southampton, SO19 9BD.

AutAngel Support Groups

Community Interest company for people with autism with information on social groups, projects and events

Contact: Web: www.autangel.org.uk/

Southampton Aspie Helping Hands Evening Group Sandy Murray & Rachel Silvester 07774 260926 07786 085029

Autism Friendly Chill-Out Sessions at Woolston Library from Saturday 1 April 2017 11am – 1pm

Woolston Library will take over hosting autism friendly sessions. For the sessions the meeting room will be set up with low lighting and large, portable sensory equipment available. Additionally comfy bean bags and a range of books will be utilised to create a comfortable calm space for families to use, either to stay in or dip in and out of as they use the full range of library resources and services elsewhere in the building.

They welcome chewys, ear defenders, pushchairs and any other aids you want to bring, a social story and shoe park will be available for the events.

Follow updates on the Southampton City Libraries Facebook page

If you have any questions or queries please contact them on 023 8083 3007 or email library@southampton.gov.uk

Ambitious About Autism

Ambitious about Autism is the national charity for children and young people with autism. They provide services, raise awareness and understanding, and campaign for change. Through TreeHouse School and Ambitious College they offer specialist education and support.

Their ambition is to make the ordinary possible for more children and young people with autism.

Website: https://www.ambitiousaboutautism.org.uk

Ambitious about Autism is based at:

The Pears National Centre for Autism Education
Woodside Avenue
London
N10 3JA

Tel: 020 8815 5444

Email: info@ambitiousaboutautism.org.uk

Ambitious about Autism does not provide an advice and assistance service and cannot respond or provide support for individual cases. If you need advice and assistance then please visit their signposting page, which provides information of organisations that may be able to help. You may also wish to join their online forum Talk about Autism where you can discuss anything related to autism. For all other enquiries, they aim to respond within 2 working days.

ARC

‘People with Learning Disabilities in the Criminal Justice System’: A Guide for Carers and Learning Disability Services

‘People with Learning Disabilities in the Criminal Justice System’ is an ARC project funded by the Big Lottery Fund. People with Autistic Spectrum Conditions are seven times more likely to come into contact with the Police than the general population. Fifteen per cent of young people in custody are on the autistic spectrum. Young people with learning disabilities are ten times more likely to find themselves in custody than the general population and represent 30% of people in custody. Ten per cent of the prison population has a diagnosed learning disability (that’s 8000 people in England and Wales), and 60% of prisoners have difficulties with ‘communication skills’.

This free guide talks you through: What happens when people get into trouble • What you can expect • What rights people have • Where to go for help. The guide looks at all stages of the Criminal Justice System, from Police custody through to Courts, Prison and Probation. To download the guide, click here  or call 01237 441786.

IPSEA

Registered charity improving education for children with SEN/Disability by giving parents free legally-based advice

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IPSEA mailing list

Click here to join our mailing list so that they can send you relevant updates and information.

Information service

This operates as a signposting service and is for general legal queries. By completing their online Information Service form, you will get a quick response, signposting you to factsheets and links to information on their website.

Advice Line

This provides next step advice on: problems with schools, requesting statutory assessment, statements and Education, Health and Care Plans, annual reviews, disability discrimination and exclusion. Please click here to book an appointment to get one of their advisers to call you back.

Tribunal Helpline

Our Tribunal Helpline Gives next step advice on SEN appeals and disability discrimination claims to the Special Educational Needs and Disability Tribunal. When you call they will also assess whether you need casework support. Please click here to book an appointment to get one of their advisers to call you back.

IPSEA training

IPSEA provides a wide range of SEN training for Parents, School Staff, Parent Forums, Support Groups, Local Authority SEN teams, Parent Partnership Schemes, School Governors and other groups / organisations. Click here for details.

https://www.ipsea.org.uk/

The National Autistic Society

Main contacts:

Email: nas@nas.org.uk

Autism Helpline: 0808 800 4104

Head Office Switchboard (administrative enquiries only): 020 7833 2299

http://twitter.com/#!/NatAutisticSoc

http://www.facebook.com/NationalAutisticSociety

Head office address:

The National Autistic Society
393 City Road
London, EC1V 1NG
United Kingdom

The Autism Directory

The Autism Directory is an online directory website that aims to pull together the help and support that is out there and signpost autism families to the help they need. It does not intend to duplicate anything that other services provide, just simply to pull it all together in one easy to use website that can be returned to again and again to get information, support and help.

The directory is populated by anyone who can share information for the benefit of other individuals, families and professionals who live and work with autism. Whether it is to access help and support in Health, Education, Treatments & Therapies, Personal Support, Living Support, Money & Legal, Recreation & Holidays, Books & Magazines or even finding autism friendly businesses (such as hairdressers), the Autism Directory is growing daily with more and more resources to tap into.

The directory covers the UK on a national and local level, and is starting to attract entries from all over the world too.  While the Autism Directory team populate what they can with the research they do, it relies on the autism community to share their own information for the benefit of others. So where you find an area of the UK with little or no entries on the directory, that is where we need some extra help and we would be delighted to have more volunteers to help us fill in these gaps.

The Autism Directory is a company limited by guarantee with registered charity status with the charities commission; number 1143855. The charity is managed by a team of volunteer Trustees and Chief Executive who can be contacted at hello@theautismdirectory.com

http://www.theautismdirectory.com/

Autism and Nature Website and Publications

Autism and Nature is a non-profit organisation dedicated to enriching the lives of people on the autistic spectrum, especially children, by engaging them with the countryside and nature. They believe that contact with the natural world can benefit a child’s learning, health and well-being. They are raising awareness of these benefits, and developing educational resources in partnership with schools, local authorities, conservation organisations and autism charities. They are currently producing a series of local guide books, to help families and teachers to introduce children with autism to nature and the countryside. So far the series covers Kent, West Sussex, Surrey and Suffolk and the latest one covers East Sussex. Whilst Hampshire has not been covered yet, the above will be of help to those of you living close to the borders or who are prepared to travel and as a lot of the information is generic, it can be applied to any part of the countryside. For more information, click here to visit the website.

Autistica

Autistica is a charity which both funds and Photo of boy behind toy blockscampaigns for medical research to understand the causes of autism, improve diagnosis, and develop new treatments and interventions.

https://www.autistica.org.uk

Buzz Network

The Buzz Network is a group for Southampton parents/carers of children with disabilities/special needs. It is open to children with any disability from ADHD to visual impairments, as long as they meet the eligibility criteria. It is funded by Southampton City Council who work closely with the A-buzz parent carer forum to make sure it is meeting parents needs.
Who to contact:

Contact Name
Julie Lemarquand
Telephone
023 8083 2069 (Monday and Tuesday)
023 8083 3881 (Wednesday and Thursday) – Beth Carter
E-mail
julie.lemarquand@southampton.gov.uk

More information here: http://sid.southampton.gov.uk/kb5/southampton/directory/service.page?id=0ovhp5ztIRo&localofferchannel=0

Google tools for special needs

Technology can be a powerful tool to assist people with special needs or any sort of learning challenge. In particular the Chrome web browser allows users to install a wide variety of web extensions that provide tools that can help all learners, regardless of ability level.

http://www.controlaltachieve.com/

Interacting with Autism

Website with a range of resources and insights:

http://interactingwithautism.com/

‘He’s Not Naughty’

Book for those parenting a child with recent diagnosis of autism

http://www.hesnotnaughty.co.uk/

How It Works: Autism360

This website is a tool for you to easily build a profile, find treatment options from others like your child or yourself, track progress and get reports that you can share with physicians and caregivers.
Start by building a profile of symptoms, life events and other details from which we will create for you a structured record. At your own pace, you will be able to see, edit, and update an accurate picture of the strengths and challenges of the person for whom you wish to find answers.

MacIntyre Charity

We provide learning, support and care for more than 1,200 children, young people and adults who have a learning disability and/or autism, at more than 150 services across England and Wales.  Our diverse range of services includes registered care homes, supported living, outreach, accredited training schemes and lifelong learning services, as well as a residential special school and further education provision.

http://www.macintyrecharity.org/

Referrals and Placements

Allison Bauman
Tel: 01908 230100
Email: referrals@macintyrecharity.org

Great Interactions

Gwenne McFadzean
Tel: 01908 230100
Email: greatinteractions@macintyrecharity.org

To comment on any of MacIntyre services

For more information, please download our leaflet by clicking the link on the right.

For general enquiries or if you need help to find the right person

Call us on 01908 230100
or
e-mail us customer.solutions@macintyrecharity.org

MacIntyre

602 South Seventh Street
Milton Keynes
Buckinghamshire
MK9 2JA

In Hampshire MacIntyre offers

Please scroll down to see the latest Care Quality Commission information for each of these services.

Registered Care & Supported Living Services
Contact:
Alina Conway, Area Manager – EMAIL

 

Care Quality Commission Information

MacIntyre Hampshire & Kent Supported Living DCA, Eastleigh

CQC logo

CQC regulates MacIntyre Care to provide care at MacIntyre Hampshire and Kent Supported Living
We haven’t inspected this service yet
We checked this service was likely to be safe, effective, caring, responsive and well-led during registration.
We checked this service was likely to be safe, effective, caring, responsive and well-led during registration.

Cottage Farm, Hythe. We currently have a vacancy at this service. Click here for more information

CQC logo

Cottage Farm

CQC overall rating

Good

Rowan Close, Southampton

CQC logo

Rowan Close

CQC overall rating

Good

Parent Voice

parent-voice-logo

Parent Voice is an information and advice service for parents and carers of disabled children aged 0-25 in Hampshire.

0300 303 8603

Email: parentvoice@roseroad.org.uk

Website: http://www.parentvoice.info/en/Home_Page

 

Peaceful Play (Autism and Disability Friendly)

Southampton Portage Service

Southampton Portage is a home teaching service for young children with special educational needs aged 0-3 years who are delayed in at least two areas of development and their families.

Contact:
Christine Hallett

Telephone: 023 8083 4375
E-mail: portage.earlyyears@southampton.gov.uk
Where to go:
Southampton Portage Service
0-25 Service – Special Educational Needs and Disability
Ground Floor North wing, Civic Centre
Southampton

Southampton University SHARE Project

The South Hampshire Register is a unique research project involving children aged 3 – 18 years who show symptoms of ADHD, Anxiety or behavioural difficulties.

They work in collaboration with local NHS trusts to help gather a wide range of information about these children to help drive current and future research.

They also provide a comprehensive research assessment of children, to help parents and clinicians learn more about their child’s behaviour and abilities.

http://www.southampton.ac.uk/share/index.page

Dr Margaret Thompson, Clinical Lead for SHARe Project

Telephone:+44 (0) 23 8059 9677

Support Dogs

Support Dogs is a national charity (Mainland UK) dedicated to increasing independence and quality of life for people with various medical conditions. We provide, train and support specialist assistance dogs to achieve this.

We provide help with everyday tasks for people with physical disabilities, give advance warning of seizures for people with epilepsy and provide safety and support for children with autism and their families.

We are registered founder members of the Assistance Dogs UK governing body and Assistance Dogs International. Support Dogs receives no government funding and relies on donations and fundraising to continue our work transforming lives. Our registered charity number is 1088281. We are members of the Fundraising Standards Board.

Autism Assistance Dog
Life changing best friends for children with Autism

Our autism assistance programme is life changing for both the child with autism and their family.

Autism Assistance Dogs are trained to provide safety and to facilitate a more independent and socially inclusive life for both the child with autism and their family.

Our address is 21 Jessops Riverside, Brightside Lane, Sheffield, S9 2RX

You can call us on 0114 261 7800

PBS – Positive Behaviour Support

Support someone with behaviour that challenges? Check out these easy read guides to positive behaviour support:

 

People With Learning Disabilities

 

Autism Classroom

This site has been around since 2006 and it is designed to provide assistance to educators who are educating children with autism and since parents are a child’s first teacher, this site is for you too!  On this site you will find information about teaching children with autism and developmental disabilities, running a successful autism classroom, setting up spaces in the home and community for a child with autism, locate books and apps helpful in educating children with autism and find training options. They  are the home of the books How to Set up a Classroom for Students with Autism (Second Edition), How to Set up a Work Area at Home for a Child with Autism, Lesson Ideas and Activities for Young Children with Autism and Colors Outside. They are also home of the mobile apps Autism Classroom, Teens with Autism and Developmental Disabilities, Behavior Support for Autism, Colors Outside and Classroom Set Up for Autism & Self-Contained Classrooms.

They believe that access to quality information should be available to all parents. They strive to provide practical and useful information that can help in the lives of those with autism and their families, friends and communities. See their products page here.

The Pinterest Page with pictures of classroom supports and home supports for autism can be found here.

http://autismclassroom.com/

 

Resources

www.communicotool.com/
Make it easy for non-verbal personsto find their words

www.visualautismresources.co.uk/
Autism Communication Aids‎ Autism Visual Supports‎

 

Step by Step Guides

HOW TO SUPPORT PEOPLE WITH AUTISM: download a useful guide created by the Department of Health

HOUSING; download a useful guide to accessing local housing services Housing Advice Guide.

EMPLOYMENT; National Autistic Society/Department for Work and Pensions guide for employing people with autism –Untapped Talent